Our Menu Has Changed

 

Let’s face it, at some time
We all need to call the doctor’s office.
We need to talk to someone;
A nurse, physician assistant, doctor.
We’d settle for any warm body
At the other end of the line.

I’m doing it.
I’m calling the doctor’s office,
I have to talk to someone,
I’ve held off as long as possible,
I hate to be a complainer.

I have questions,
I need answers,
I don’t feel good,
My meds aren’t working,
My symptoms are worse,
I feel anxious,
I’m having a meltdown,
I just need to complain.

I’m calling!
I’m dialing!
It’s ringing!
I’m listening!

Please listen carefully, as our menu has changed, and you are out of options:

Press 1: if you feel you’ve been f_____ by Parkinson’s
Press 2: if the song “shake, rattle, and roll” is stuck in your F’d up brain
Press 3: if you are angry and bitter because you have PD
Press 4: if you feel like shit
Press 5: if your medicine is making you nauseous
Press 6: if you are hallucinating
Press 7: if you think you called because you are hallucinating
Press 8: if you feel depressed and apathetic
Press 9: if you don’t care that you don’t care
Press 10: if you think you have been misdiagnosed and don’t really have PD

Press star if you need these options repeated, oh sorry, we will only say them once!
You should have been listening more closely.
You may hang up and end this call at any time!

Yes, I think I’ll just end it!

Lynn McHale July 2014 Copyright All Rights Reserved

Neuro – Nibbles

Nasty nibbles in the Nigra,
Bite size bits eaten away.
Neurological Pac Man,
He’s here to stay!
He cheats, you say!

Must hold on, delay,
A lesser you, such a crime,
Already lost this game,
Depleted precious time,
No reason, no rhyme.

Neuro-nibbles in the Nigra,
A neurological foray.
A nosh here, a nosh there,
Curse the Nigra I say,
Cure the nibbles, now, today!

Lynn McHale June 2014 Copyright All Rights Reserved

Revised 2/19/2015

My made up word and definition:

Neuro-nibble; short for neurological nibble.  It is what happens in your brain when you have Parkinson’s disease, a neurological degenerative brain disorder.  The brain does not produce enough of the chemical dopamine which is needed by the neuro-transmitters to communicate to all parts of the body.  Therefore, each and every day, day after day, tiny neuro-nibbles occur in your brain as the dopamine becomes scarcer.  At the time, you don’t feel the neuro-nibble, or even sense it is happening. But, over months, and years the cumulative effect takes its devastating toll as the brain continues to degenerate, one little neuro-nibble at a time.

Owner’s Manual for Walking

 

For most people walking is like breathing; natural,
Don’t have to think about it at all,
It’s easy, mechanics just seem to work,
Gait is smooth, not with a jerk.

I watch other people walk,
Envious of their grace and stride,
No hesitation, no balk,
No replay tape running inside.

“Bring your leg around, don’t drag it,”
“Heel hits first, toes upward,”
“Remember to swing arm, shoulders back,”
“Don’t look down, hold head a proper angle.”

Think about mechanics of each step,
Concentrate so it all comes together,
Repeat the process again and again,
Need owner’s manual for walking.

Lynn McHale June 13, 2013 Copyright All Rights Reserved

Curtain Call – Second Act

No more patience!
For those starring in role of a lifetime,
Featuring themselves in lead role,
But playing role of the victim,
But playing role of the martyr,
Always re-reading script of “their story.”

Co-starring are excuses and blame,
By far the easiest roles to play,
Don’t even have to rehearse,
You’ve said these lines a hundred times.
They just fall from your mouth naturally, with such ease.

We’ve heard the same old lines, same old excuses,
Same old placing blame elsewhere.
Why would we go see you perform in this play?
Why would we accompany you to after-party?
You don’t even show up to your own life’s party!

Lights dim!
The play closes, bad reviews!
No applause for you in this role,
Your performance is not what it should be!
Needs more effort on your part.
No one wants to come see this play,
Even be around you, the lead.
Still blaming others, still seeing yourself as a victim,
Still holding tightly to your script.

Good News!
New play is opening,
“Second Chance, Your Second Act.”
New role starring you,
New audience with whom to connect,
New script with positive words, phrases and lines.
”Second Chance” comes around once in a lifetime!

Opening Night!
Curtain goes up.
It’s you, starring in the role of your life!
Will you open with same old worn out lines,
Lines we have heard again and again.
Or, will we be surprised to hear new lines?
Lines we have never heard or haven’t heard in a very long time.
Lines that at one time in your life brought down the house!

You have been rehearsing new lines,
Bravely trying them out, speaking loudly,
Watching reactions on their faces,
Measuring responses, looking for connections,
Hoping for applause and an encore!
You only have “Your Second Act,”
Once curtain falls, that starring role ends!

Rave Reviews!
You brought down the house!
You want Critic’s final review to read;
How everyone stood up and cheered,
How you had a passion for life,
How you loved all the activities with which you were involved,
How you greeted each new day as a new opportunity,
How you kept practicing those lines and movements,
Perfecting them to best of your ability,
How you took on another role, and another, and another,
Never giving up, even when the roles got tougher and tougher!

Don’t squander the opportunity to star in your life’s role!
You deserve rave reviews!!

Lynn McHale  4/2/2014 Copyright All Rights Reserved

Chemical Warfare

 

My Art Therapy class interpreted Chemical Warfare with these medicine bottles.  3/24/14

My Art Therapy class interpreted Chemical Warfare with these medicine bottles. 3/24/14

 

 

 

 

 

 

Brain battles rage inside my head.
Cells falter, some already dead.
Crucial messages not getting through,
The chemical serving very few.

My brain engages in chemical warfare.
Battles rage over Dopamine, an agonist, rare.
In great demand, only a little bit,
Skirmishes over how much to transmit.

Which cells will occupy the Dopamine?
Never a winner, so cruel, and so mean.
Never a truce, never any R and R,
There are no heroes, it’s all very bizarre.

Same battle fought over and over,
Absolutely no end to this war,
Each side losing more and more precious ground,
Cells depleted, no reinforcements found.
Lynn McHale 7/21/13 Copyright All Rights Reserved

Did Humpty Dumpty Have Parkinson’s?

Did HD have PD?

Was his balance “off” in the story,

When he sat on the wall, and then fell,

Or just obese as we hear tell?

What could the King’s men and horses do?

Do you think Humpty should sue?

If he had been given L-dopa

Could he have been fixed up-a?

Lynn McHale  7/9/13  Copyright  All Rights Reserved


 

Just Pretend

 

Some days my mind plays games with me,
It pretends we don’t have PD,
Thinks about all the things we can do,
Then, oops, limited to just a few.

Some things I can still do, who knew.
Some things I can’t do, know that too.
Oh so sad and true, makes me blue.

I look at what I see,
Am I picture of PD?
Can’t believe this is me.

Just want it to flee,
Just want to be me.
Person I used to be.

Lynn McHale 3/2/13 Copyright All Rights Reserved